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This is a publication of the Consortium for Children and Youth with Disabilities and Special Health Care Needs funded by the National Institute on Disability and Rehabilitation Research of the U.S. Department of Education under grant number H133B001200.

The opinions contained in this publication are those of the grantee and do not necessarily reflect those of the U.S. Department of Education

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A Note About PDF Format

The free-to-download Adobe Acrobat Reader software is required to be on your computer in order to view and print PDF files.

An online conversion tool for users with visually disabilities is available from Access.Adobe.com. The tool converts Adobe PDF documents into HTML or ASCII text to be read by assistive screen reading programs.

Annotated Bibliographies

• Assistive Technology Annotated Bibliography: Video Tape and Compact Disks (in PDF) (in MSWord)
• Online Health Care Transition Annotated Bibliography

Consortium Briefs (in PDF)

• Brief 1 - Children with Special Health Care Needs and Access to Health and Rehabilitative Services: A Fact Sheet on Findings
  
  
• Brief 2 - Children with Special Health Care Needs and Access to Specialty Care from Physicians: A Fact Sheet on Findings
  
  
• Brief 3 - Children with Special Health Care Needs and Access to Home Health Services: A Fact Sheet on Findings
  
  
• Brief 4 - Children with Special Health Care Needs and Access to Mental Health Services: A Fact Sheet on Findings
  
  
• Brief 5 - Children with Special Health Care Needs and Access to Physical Therapy Services: A Fact Sheet on Findings
  
  
• Brief 6 - Children with Special Health Care Needs and Access to Occupational Therapy Services: A Fact Sheet on Findings
  
  
• Brief 7 - Children with Special Health Care Needs and Access to Speech Therapy Services: A Fact Sheet on Findings
  
  
• Brief 8 - Children with Disabilities and Private Insurance Coverage of Medical Services: A Fact Sheet on Findings
  
  
• Brief 9 - Promising Practices in Health Care Transition: A Project Brief
  
  
• Brief 10 - Education for All and Children with Disabilities: International Policy and Practice
  
  
• Brief 11 - Inclusive Education in Secondary Schools: A Global Perspective
  
  
• Brief 12 - Assistive Technology for Children with Disabilities and Special Health Care Needs: Introducing the Consortium?s Annotated Bibliography of Audiovisual Resources
  
  
• Brief 13 -Promoting Assistive Technology in an Outcome-Driven Model of Service Delivery
  
  
• Brief 14 - Evaluation and Assessment Models for Assistive Technology: A Fact Sheet for Service Providers
  
  
• Brief 15 - The Benefits and Challenges of Research Partnerships: Families and University Researcher Working Together
  
  
  

In Process

• Understanding Funding Sources and Reimbursement for Services Provided Using Telehealth: An Issue Brief for Families (Fall 2004)
  
• Funding Sources and Reimbursement for Assistive Technology: An Issue Brief for Families (expected publication, Fall 2004)
  

Consumer Briefs (in PDF)

• Brief 1 - Promising Practices in Health Care Transition: A Research Fact Sheet for Consumers
  
  
• Brief 2 - Secondary Health Coverage For Children With Special Health Care Needs: A Fact Sheet For Families
  
  
• Brief 3 - Funding for Assistive Technology and Assistive Technology Services
  
  
• Brief 4 - Obtaining Wheeled Mobility:  Essential Elements to Consider
  
  

Journal Articles & Books by Topic

Access to Pediatric Rehabilitation

• Krauss, M.W., Gulley, S., Sciegaj, M., & Wells, N. "Access to specialty medical care for children with mental retardation, autism, and other special health care needs." Mental Retardation.
  
  
• Krauss, M., Wells, N. et al, (2001). Navigating Systems of Care: Results from a National Survey of Families of Children with Special Health Care Needs, Children?s Services: Social Policy, Research and Practice, 4, 165-187. (Abstract of published journal article)
  
  
• Leiter, V. (under review). The division of labor between educational and medical systems of access to pediatric therapeutic care. Exceptional Children.
  
  
• Leiter, V., & Krauss, M.W. (under review). Claims, barriers and satisfaction: Parents' experiences requesting additional special education services. The Journal of Disability Policy Studies
  
  
• Leiter, V. (in press). The division of labor between systems of therapeutic care for children with disabilities. The Journal of Disability Policy Studies.
  
  
• Leiter, V., Krauss, M.W., Anderson, B., & Wells, N. (in press). The consequences of caring: Impacts of mothering a child with special needs. Journal of Family Issues.
  
  
• Robison, D., Krauss, M.W. (2003). Lessons from the field: Participatory action research in a family research project. Mental Retardation, 41, 460-464.
  
  

Promising Practices in Transition

• Reiss J.G., Gibson, R.G. (2002). Health Care Transition: Destinations Unknown. Pediatrics 110:1307-1314.
  
  
• Reiss J., Gibson RG, Walker LR. (under review). Health Care Transition: Youth Family and Providers' Perspectives.
  
  
• Reiss, J. & Gibson, R. (2001). Heath Care Transition List Serve: http://hctransitions.ichp.edu
  
  
• Reiss, J. & Gibson, R. (2001). Health Care Transition Website: http//hctransitions.ichp.edu
  
  
• Reiss, J., Gibson, R., Miller, R. & Wood S. (2001). Jim's Story. Video http//hctransitions.ichp.edu
  
  
• Reiss, J., Gibson, R., Miller, R. & Long S. (In development). Distance learning web site on Health Care Transition for Children's Medical Services of Florida, a state Title V CSHCN Program
  
  

Telehealth

• Woolverton, M. (2003, March). One rural family's experience with telehealth. National Council on Family Relations. "Family Focus" Special Issue on Rural Life.
  
  

Assistive Technology

• Brady, R., Long, T., Woolverton, M. (2004). Assistive Technology and Telehealth Curriculum Structure and Content in Entry-level Service Provider Training Programs: A Survey. Georgetown University, Center for Child and Human Development
  
  
• Thomas, J., Brady, R., & Long, T. (2003). A Resource Guide for Professional Development
  
  
• Conaboy, K., Long, T., Brady, R., & Thomas, J. (2003). Family Activity Brochures
  
  
• Long, T. (In press). Assessment of human performance across the lifespan. In Cronin, A. & Mandich, M.B. (Eds.). Human Development and Performance Across the Lifespan. Clifton Park, NY: Delmar.
  
  
• Long, T., Huang, L.N., Woodbridge, M., Woolverton, M., & Minkel, J. (2003). Integrating assistive technology into an outcome-driven model of service delivery. Infants and Young Children, 16, 272-283.
  
  
• Long, T.M. (2002). Quality indicators for assistive technology services: Implications for physical therapists. Neurology Report, 26, 100-103.
  
  
• Long, T.M., Toscano, K. (2002). Handbook of Pediatric Physical Therapy, 2nd. Ed., Philadelphia: Lippincott, Williams and Wilkins.
  
  
• Long, T. Woolverton, M., Huang, L. & Woodbridge, M. (2001). The Training Needs of Providers of Assistive Technology: A Survey. Georgetown University, Center for Child and Human Development
  
  
  

Topical Conference Calls

• Health Care Transition: Prespectives on Providing Specialty Health Care to Young Adults
  January 20, 2005
  
  
• Technology Solutions for Engaging Children with Autism
  November 12, 2004
  
  
• Issues, Challenges and Strategies of health Care Transition for Youth and Young Adults with Special Health Care Needs
  March 20, 2002

• Consumer-Researcher Partnerships: Benefits, Challenges and Strategies
  November 20, 2002
  
  
  

Other Consortium Resource Tools & Products

• Assistive Technology: Ask the Expert
  Transcript of November 29, 2001 of online discussion.
  
  
• Edwards, T. (2004). Infants, Children, and Youth with Disabilities: Guide to Resources Produced by National Institute on Disability and Rehabilitation Research (NIDRR) Grantees. Developed jointly with the National Center for the Dissemination of Disability Research
  
  
• Long, T. (2003). Web Based Resources for Assistive Technology
  
  
• Woolverton, M., Williams, E., Farmer, J., Sulzbacher, S., and Harper, D. (2002). Use of Telehealth for Children with Special Health Care Needs Living in Remote Communities: Family Member Interview Protocol
  
  
• Woolverton, M., Williams, E., Farmer, J., Sulzbacher, S., and Harper, D. (2002). Use of Telehealth for Children with Special Health Care Needs Living in Remote Communities: Local Provider Interview Protocol